Our sweet baby girl was born with a rare skin disease called Epidermolysis Bullosa. On the day she was born our lives changed forever. Through her life God has shown us his power, comfort and healing hand. We are blessed to be Ella's parents and can't wait to see what God has in store for her life.
Thursday, September 2, 2010
Murray Staycation 2010 – Day 6
After our “church school” (that’s what Ella called it) meeting, we dropped Metti off then headed to Hard Times CafĂ© for a yummy chili lunch, then to the pool store to pick up some pool salt for Ella’s bath (it helps the water not sting). Ella didn’t sleep very well last night, so after the pool store she told us that she wanted to go home and take a nap, so that’s exactly what we did. We came home and Joe and I worked on some family business while Ella laid in the basement and slept. Of course now she’s not tired.
Joe and I have really noticed that Ella is coming out of her shell. It’s such an answer to prayer! I’ve mentioned before that Ella’s shyness has, in many ways, been harder for us to deal with than her EB. We’re social. We like having dinner with friends. We like going out. We just like people. So to throw a shy child into the mix can really cramp our style! But just over the past couple of months we’ve really noticed that Ella isn’t as shy anymore. Sure, she’s timid at the beginning, but within minutes she’s talking to people without hesitation. Even today her teacher said, “You keep saying that she’s shy, but I don’t really see that.” At lunch she ordered for herself, “I want a hot dog.” And when the waitress asked her if she wanted French fries, applesauce or a fruit cup, Ella looked at her and said, “Applesauce.” After lunch we went to the Christian bookstore that’s next door to Hard Times, and Ella picked out a new book. She went to the register and when we told her that the lady needed to scan the book, Ella reached up and handed the book to her. Then when she was done scanning she asked Ella, “Do you want it in a bag, or would you like to just carry it out like this?” Ella looked and her and said, “I just want to carry it out like this.” She’s so fun to have around, and this staycation has been a great opportunity to get to hang out with her more.
Wednesday, September 1, 2010
Murray Staycation 2010 – Day 5
After our meeting with the Eagles we took Ella to a special treat. We went to a place called “Paint This” and it’s a paint your own pottery store. We made the mistake of telling Ella that we were going to paint things, so all she talked about all morning was how she wanted to go paint a cup. We got there and she picked out a cup with the ABC’s on it. It’s pink on the outside and green on the inside. She actually did pretty well. Joe and I had to clean up some of the paint drops, but all in all it was evenly colored and looked great…for a 3 year old. She had a blast and probably would have stayed there all day if we had let her.
Tonight we headed up to MD to have dinner with our good friends, Russ and Jenni. Many of you remember Jenni as my maid of honor in our wedding, and as the one who made the CD when Ella was born. Since they live in MD we don’t get to see them (and their precious 2 year old daughter, Millie) nearly as much as we want to. So we figured Murray Staycation 2010 was the perfect opportunity to head up to MD for dinner. It was a great time hanging out. Millie is so sweet and was so great with Ella. She asked Ella to sit on her princess couch with her, and even offered to kiss her boo boos. Ella, of course, fell asleep in the car on the way home. She’s been sleeping great these past few nights. I think we’re just tiring her out so much during the day that she can’t help but sleep well.
It was another great day for the Murray staycation. We highly recommend taking one.
Tuesday, August 31, 2010
Murray Staycation 2010 – Day 4
I am not surprised in the least that Ella fell asleep within 5 minutes of us putting her to bed, and Joe wasn’t too far behind her. It was a busy day!
It was hotter than ‘you know what’ outside, and the Lord was really watching out for us because we found a parking spot right on the mall RIGHT ACROSS THE STREET from the museum! If you’ve ever been to DC you know how amazing that is! We were so pumped! We headed inside and straight upstairs to the Butterfly Exhibit. Once again, the Lord was looking out for us because unbeknownst to us, Tuesdays the tickets to the butterfly exhibit are FREE! WOO HOO! Ella loved looking at all the butterflies. A couple of times they flew right past her and tickled her arm or face.
After the butterfly exhibit we toured the rest of the museum. Of course I had to see the Hope Diamond. And of course I had to get a picture of an Alexandrite (Katie Alexander…Alexandrite…get it?), which also happens to be Ella’s birth stone (coincidence? I think NOT).
We decided that since we were already downtown, we’d stroll next door to the Museum of American History and see what they had to offer. First stop…ice cream. Second stop…Julia Childs kitchen. We didn’t see every exhibit, but we hit a few of the highlights we thought Ella would enjoy. Her favorite, by far, was “America on the Move” which displayed several trains and cars. She loved each and every one of the trains. They even have an old subway that simulates a ride. Ella didn’t want to get off of that one. We also hit “Star Spangled Banner” where we sang the National Anthem while looking at the flag that actually inspired the writing of our National Anthem. It was amazing! We finished our trip with a stop at “Treasures of Pop Culture.” I thought there would be more things for Ella here, but unfortunately the only thing she recognized was this little guy.
Ella did NOT want to leave. She cried the whole way home and kept saying that she wanted to go to the store (apparently a museum is very similar to a store when you’re 3 years old) and she wanted to ride the train. Once we got home and turned on Dora she was fine. I’m confident that her little melt-down was because she was tired.
We finished up the day with dinner at our good friend, Beck’s house. Our other good friends, Jessica and Rob, and Beck’s friend Brian, joined us and we had a great time. Ella is really coming out of her shell! She wasn’t shy in the least at dinner. She happily sang for everyone and when we left she told each person goodbye. It was a great day!
Monday, August 30, 2010
Murray Staycation 2010 – Day 3
I didn’t post about day 2 because, honestly, not much happened. Joe had his fantasy football draft (can you hear the excitement in my voice) which lasted pretty much all day. This was the one event that was exempt from the “family” rule because it has been on the calendar for weeks. So he was allowed to go alone, and Ella and I stayed home. We just hung out, stopped by the grocery store, then came back home. We did go out to eat as a family to our favorite restaurant, Hana Tokyo.
Today Ella and I slept in while Joe got up early and took care of some family business. I mentioned our sleeping habits in the last post (ok, MY sleeping habits), but this time I’ll mention Joe’s. The good thing about me is that when Ella wakes up in the middle of the nights I have no problem going back to sleep. Joe, on the other hand, usually lays in bed for awhile and can’t fall asleep, then he decides to just get up and be productive. So this morning he was up around 6 and just stayed awake filing, doing bills, etc.
We took it easy this morning and just laid around the house until after lunch. Then, we decided to venture out to Potomac Mills (outlet malls) to see a movie and exchange a shirt. We walked around the main outlet mall for a few minutes, and got these pictures taken.
Ella wasn’t sure what to think of the photo booth, but Joe and I loved it.
After the mall we headed to the movie…Toy Story 3. We love that Ella can now sit through an entire movie! It’s nice and cool, but we’re still able to get out of the house. And Joe and I always end up enjoying the movie just as much as Ella does. She loved Toy Story 3 because it has a lot of toys that she recognizes…Barbie, Mr. Potato Head, a cowboy, a bear, etc. She talked a lot about those toys during the movie, and when any music would start playing Ella would start dancing in her seat.
While not overly exciting, it was a great day. So far Murray Staycation 2010 is a great success.
