Saturday, April 11, 2009

Georgia EB Resolution


This is Joe. Yes, you have not heard from me in a while on Ella's blog as Katie has adopted the primary role in managing and developing it. Yet, I felt compelled to post about a very special event which occurred last week in Georgia. Our good friends Andrew and Shawn Tavani live in Georgia where they are raising their beautiful little daughter, Ellie who also has EB.

You may have heard us mention a few times in past posts about how we were introduced to the Tavani's a few days after Ella was born in June of 2007. By the grace of God, a mutual friend of ours hooked us up at a time where we were looking for answers to the myriad of questions we had about EB. In entered Andrew and Shawn and Ellie into our lives and we have been friends since.

On April 2, 2009, as a result of the committed efforts by the Tavanis, the Georgia General Assembly passed a resolution making the last week of October Georgia EB Awareness week (the same week of the National EB Awareness Week). You can see the proceedings by clicking on the following link below. The most pertinent event happens right around the 3rd minute where Ellie is introduced and then the votes by the members are recorded.

We applaud the Tavanis for the great work they are doing on behalf of EB awareness and their efforts to help our daughters and the many others who are living with EB.


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