Monday, July 21, 2008
A new EB baby
A baby has been born in Orlando, FL with EB. I don't know any details, but please lift up your prayers for this family and their precious baby boy. The first few days are the most scary for the parents and have the biggest learning curve. This family needs prayers of comfort and knowledge to make the best decisions for their son.
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We are the family with the new baby boy with EB in Orlando. We want to thank Katie and all of you for your prayers. Ella is a beautiful little girl. Congratulations.
Jameson has spent 14 days in the NICU and tomorrow we go home from the hospital. We are heading to Miami to see Dr. Connelly, an EB specialist, to gain knowledge and learn the best treatment for him. He is producing good skin and is a strong little guy. We don't have a full biopsy yet so we are anxiously awaiting those results.
We have seen God work in amazing ways the past 2 weeks not only in Jameson's life, but in the lives of nurses, friends, and family. God works all things for good to those who love Him and are called according to His purpose.
Please pray for a miracle because we know God will receive all the glory.
Todd and Melisa Setsma
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