tag:blogger.com,1999:blog-9201267026045678449.post2589142038636158274..comments2023-10-28T07:24:03.811-04:00Comments on Team Joella: A Fine LineCurby Alexanderhttp://www.blogger.com/profile/09869886724369878916noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-9201267026045678449.post-46658649852627520562013-09-05T09:47:06.029-04:002013-09-05T09:47:06.029-04:00Katie,
I agree with the other comments that on rea...Katie,<br />I agree with the other comments that on reading your story, my initial thought is this woman has some special needs of her own. Since it's a restaurant you frequent often, I'd suggest you have a conversation with the manager. They need to know if an employee is making their customers feel uncomfortable. We've encountered these moments many times, and it always leaves me with an undercurrent of anger. Taking some type of action helps dissipate that, plus it shows our children that we don't have to silently endure others' rudeness. <br /><br />After 8 years of dealing with strangers' reactions to EB, I still don't feel adequately equipped to respond to some situations. <br /><br />Take care -- Adrienne PAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9201267026045678449.post-25255742552214566372013-08-28T22:59:58.973-04:002013-08-28T22:59:58.973-04:00My little girl is mildly 'special needs'. ...My little girl is mildly 'special needs'. She stares at people. Not out of rudeness, but out of curiosity. I often find myself using her moments to teach her and her siblings. My goal is to make sure that they know and understand that every single person is different. It is what makes all of God's children special is that there are no 2 alike. The other day I heard my oldest daughter (7 years old) explaining to her brother and sister(5 year old twins) why we are all different and how important it is. She went on to tell him how we need to embrace people who look different and make sure they know that they are special and loved just as they are instead of staring at them or commenting. You are doing the right thing by making sure your little one knows her own self worth and how her love is priceless within her family. I grew up down the street from the Murray family and am proud to know them. I am sure sweet Ella will change the world one day just like the rest of the Murray's.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9201267026045678449.post-82563789808340202482013-08-23T20:07:44.744-04:002013-08-23T20:07:44.744-04:00Good for you with your restraint - the woman had p...Good for you with your restraint - the woman had problems of her own and, really, if she's bussing tables for a living, she's got many more issues than Ella does. I've had the pleasure of meeting Ella and if that woman had just said, "Hi there", Ella would have talked her into loving her. So that woman's the poorer for her rudeness.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9201267026045678449.post-14255409979305667612013-08-23T18:39:24.977-04:002013-08-23T18:39:24.977-04:00Some people will never learn. I have a son with A...Some people will never learn. I have a son with Asperger's and we get nasty comments about his behavior sometimes. However, he knows better than to do what other people do.Michelle Farleyhttps://www.blogger.com/profile/00579671576516756915noreply@blogger.comtag:blogger.com,1999:blog-9201267026045678449.post-48206353141386415702013-08-23T10:49:27.294-04:002013-08-23T10:49:27.294-04:00As a mom to an adult child with autism, my first t...As a mom to an adult child with autism, my first thought was perhaps this lady had some special needs of her own? Not that it excuses her behavior, but if that is the case it mght shed some light on her behavior. Just a thought.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9201267026045678449.post-21800949823847602042013-08-23T10:41:19.695-04:002013-08-23T10:41:19.695-04:00Hey Katie - I get 100% where you're coming fro...Hey Katie - I get 100% where you're coming from...I'm the same way when people ask me about Bee. I'm so happy to "educate" the world about EB. Of I have a short version and a long version depending on location, time and genuine interest of the person asking...but those that just stare and stare kill me. I tend to be very vocal (my mother has told me that my tongue will be the death of me...LOL) and to those that are rude I always ask "may I help you?" they snap right out of it or I continue w/sarcasms while they're still around. Horrible I know...but it's the best way I've found I can handle the situation. XOXOAnonymoushttps://www.blogger.com/profile/16280289915880341102noreply@blogger.comtag:blogger.com,1999:blog-9201267026045678449.post-79096223611794488462013-08-23T01:07:56.874-04:002013-08-23T01:07:56.874-04:00I have been reading your blog for some time and am...I have been reading your blog for some time and am so impressed and lifted by your little family. You and Joe are wonderful people, and I want you to know that your blog has helped me so much and has given me great illumination on how to live life. Thank you!!Jane Taylorhttps://www.blogger.com/profile/10664939169547963900noreply@blogger.comtag:blogger.com,1999:blog-9201267026045678449.post-78291345531902618312013-08-22T21:26:18.446-04:002013-08-22T21:26:18.446-04:00I get kids, they often have difficulty sensory wha...I get kids, they often have difficulty sensory what comes out of their mouths but that was rude. You may mention it to a manager, maybe the woman needs to be educated. I am a special education teacher and I have had a few parents in the past who have made up little cards that said something like "my child has Autism which means that he displays behaviors that you may think are strange or disruptive at times. Please be patient and then their was a link to a website." Carriehttps://www.blogger.com/profile/03520036843631361886noreply@blogger.comtag:blogger.com,1999:blog-9201267026045678449.post-81774634736856504102013-08-22T15:05:32.379-04:002013-08-22T15:05:32.379-04:00Don't understand how people can be so rude...e...Don't understand how people can be so rude...especially to a child. Sounds to me like you handled yourself much better than I would have...Ella has a wonderful role model! BTW-I'm sure she will be a wonderful big sister!<br /><br />Donna Tadlock<br />Millbrook ALAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9201267026045678449.post-71352116374346388212013-08-22T13:04:04.677-04:002013-08-22T13:04:04.677-04:00Wow. You are a strong woman. But I totally get the...Wow. You are a strong woman. But I totally get the mama bear in you needing to come out and protect your baby. It's hard cuz so many people out there are so mean to people with any type of disability (or condition) and they grow up to have children who learn this awful behavior. Anonymoushttps://www.blogger.com/profile/11215725689005862390noreply@blogger.com